Interdisciplinary care for children with rare diseases
نویسندگان
چکیده
منابع مشابه
Interdisciplinary Care for Children with Rare Diseases
Children with chronic diseases require in many cases not only a continued care in health centers and hospitals, but also a particular attention in their schools. Then, in the different stages of education, teachers could have in their classrooms, at some point of their professional career, students with chronic diseases, which may be a rare diseases (RD). In general, illnesses tend to cause in ...
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A rare disease usually concerns only a handful of patients, but all patients with a rare disease combined represent a significant health burden. Due to limited knowledge and the absence of treatment guidelines, patients with rare diseases usually experience delayed diagnosis and suboptimal treatment. Historically, rare diseases have never been considered a major health problem. However, rare di...
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Infectious diseases are a major health problem worldwide, causing many serious complications, including autoimmune disorders in unvaccinated populations. The vaccinations represent the most effective method of preventing infectious diseases and cost benefit analysis of vaccination programmes demonstrated their utility. On the basis of Orphanet database, in Italy rare diseases affect almost 2 mi...
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PURPOSE/OBJECTIVES Many continuing education (CE) resources are available to support case management professionals in developing competencies in transitions of care (TOC) that apply generally across disease areas. However, CE programs and tools are lacking for advanced TOC competencies in specific disease areas. This article describes 2 projects in which leading TOC, case management, and CE org...
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Shanlee Davis, MD, Susan Howell, MS, CGC, MBA, Rebecca Wilson, PsyD, Tanea Tanda, BS, Judy Ross, MD, Philip Zeitler, MD, PhD, Nicole Tartaglia, MD, MS* Department of Pediatrics, University of Colorado School of Medicine, 13123 East 16th Avenue, Aurora, CO 80045, USA; Department of Endocrinology, Children’s Hospital Colorado, University of Colorado School of Medicine, 13123 East 16th Avenue B265...
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ژورنال
عنوان ژورنال: Nursing & Care Open Access Journal
سال: 2018
ISSN: 2572-8474
DOI: 10.15406/ncoaj.2018.05.00110